My daughter Meagan was diagnosed at age 2 years with type 1a CDG. She has came a long way since the beginning. She is only 23 pounds now and 3 years old as of October 2010. She has a bright personality. She is unable to stand on her own but sits up and crawls where she needs to go. She has had a total of 6 seizures, all that has happened in the last year. She is now on Kepra to control the seizures. Overall I am very thankful she is progressing and pray for her.