My daughter Meagan was diagnosed at age 2 years with type 1a CDG.  She has came a long way since the beginning.  She is only 23 pounds now and 3 years old as of October 2010.  She has a bright personality.  She is unable to stand on her own but sits up and crawls where she needs to go.  She has had a total of 6 seizures, all that has happened in the last year.  She is now on Kepra to control the seizures.  Overall I am very thankful she is progressing and pray for her.